As the project progresses, details of
additions to this website and other items of news will be posted here.
We are delighted to announce that the CALM study has now finished. this study by the NSF(s) was carried out by researchers at the University of Dundee and was funded by the Big Lottery.
to mark the end of the study roadshows were held within Dundee, Kirkcaldy and Glenrothes to present the findings to the carers and nurses who took part.
The study evaluated a new way of community based mental health nurses delivering support to carers of people diagnosed with
schizophrenia in order to help maintain carer wellbeing. By wellbeing we mean reduced burden, meeting unmet needs, and improved level of satisfaction with services.
The idea was to compare the new methods of support with that which is normally offered to carers as 'standard'. the findings, although limited, showed some benefits to carers from both the new and standard support.
For the new approach, the experienc of burden arising from family and friens was reduced. For the standrad approach, the espeirnece of burden arising from the aptients' behaviour was reduced. Satisfaction with servces was high, however, umet needs remained.
Five areas were also identified that might have limited the help given by nurses;
- Carers' health problems, such as depression
- Life problems experienced by the person diagnosed with schizophrenia, such as relationship breakdown
- The presence of the family difficulties, such as housing or legal problems
- The carers' unmet need
- The other service demands that are placed on nurses during the time that they delivered support, such as high caseload
The study opens the way for further research on the nature of support that community based mental health services
offer to carers of people diagnosed with schizophrenia.
Study now complete. Final report submitted
The study is now coming to an end, we will be disseminating results soon
The first stage of the CALM project finished in the summer and we
are now onto the second stage. This involves interviewing carers about receiving
the nurse support, and interviewing nurses about giving support. Even if you feel
you have little opinion about the nurse support, we are still very interested
in what you have to say, regardless of whether you received support or not. Unfortunately,
the nature of the second stage means that we can only select a few carers and
nurses to take part. If you are selected we will contact you to find out if you
would like to take part in the next stage of the project. We would like to thank
all the carers and nurses who have taken part and made this project possible.
We really appreciate the time you have given us.
CALM Steering Group
CALM steering group meeting will be held on Wednesday the 16th
of November at 10.15am at Airlie Place.
A congratualtions goes to Lawrie who has taken up a new post as
Professor at Napier University and the Centre for Healthcare Research. Lawrie
still retains his position with the project.
Update on Study
is a brief summary of what has happened in the study and where we are at now.
In the first steps of the study, carers took part in the first interview, completed
the Satisfaction and COPE questionnaires. In the second stage, nurses were asked
to provide support to carers for a maximum of 12 visits. Once this was done, carers
again took part in the interview, filled in the Satisfaction and COPE questionnaires.
The third stage takes place 6 months after the second interview. At this time
carers will be interviewed again and will be asked to fill in the questionnaires.
By doing this after 6 months we can measure whether the nursing intervention has
any long lasting impact on carers.
At present we have completed the first
and second stages, and are in the process of completing the third stage. Not everyone
started at the same time, therefore some carers are finished, whilst others are
waiting for their 6 month interview.
We would like to apologise to the
few carers who did not receive any visits from a nurse. This happened due to various
reasons, such as nurses moving posts, and unfortunately we were unable to replace
them. If this applied to you we would still appreciate your continued participation
as the information you provide is still extremely valuable to the study. We would
also like to take this opportunity to thank everyone who has taken part in the
study so far.
Due to the nature of the second part of the study, only a
sample of carers will be selected to take part in another interview. This interview
will be different in that it will explore what carers thought was and was not
supportive. Carers who are selected will be contacted and asked if they would
like to take part, but this will not be happening for some time.
Steering Group meeting will take place on Monday 23rd of May at 10.15am at 11
Airlie Place, Dundee.
Duffy has now left the CALM project. Brigid has worked extremely hard during her
time with CALM and we would like to thank her for her contribution to the project.
Suzanne Ainsley has replaced Brigid and can be contacted by email at firstname.lastname@example.org
or by phone on 01382 348555.
Change of Name
The Community Fund
has now changed its name to The Big Lottery Fund. The Big Lottery Fund is a new
organisation that will hand out half the money for good causes from the National
Lottery. It will make it easier to apply for Lottery money and will make it easier
for you to see where the money goes. The Big Lottery Fund was created by merging
the New Opportunities Fund and the Community Fund.
Steering Group Meeting
next steering group meeting will be held on Tuesday 16 November at 10.15am in
Airlie Place, Meeting Room 1.
We have now completed
year 1 for the study and have now finished recruiting carers. We would like to
take this opportunity to thank all the carers for taking part in the study it
is much appreciated. We would also like to thank all the nurses and Cathy Hamilton
and Stuart Pryde for helping us to recruit carers, we couldn't have done it without
Brigid Duffy (Research Assistant) is leaving the study
and is moving to the West Midlands to start a training course at Birmingham University
in Clinical Psychology. Brigid would like to thank everyone for all there help
and support over the last year and has enjoyed working on the study and especially
meeting all the carers. We are currently advertising for a new research assistant
in the local press and on www.jobs.ac.uk.
The Scottish Executive have requested for a consultation on developing
a strategy to help identify Scotland's carers. The consultation period ends on
October 29th and final guidance is expected in early 2005. It is hoped that NHS
Boards will be required to submit strategies by autumn 2005. Click on the link
below for more information: www.scotland.gov.uk/News/Releases/2004/08/08150635/
We are pleased to announce that the teaching
programme in carer support for nurses developed for the CALM study has received
an 'Honorary Graduates Award for Innovative Teaching - 2004'. This is a great
achievement for the study and the people who developed the teaching programme.
We have recently advertised the study in The Courier (1/03/04 and
23/04/04), The Telegraph (8/04/04 and 22/04/04) and The Arbroath Herald (09/04/04).
The articles have been useful in providing information about the study and accessing
potential carers for the study. We have had some response from carers.
Carer recruitment is now fully operational and we are recruiting carers
in all four areas. Brigid has met with many of the carers and the nurses are now
starting their support sessions with their carers.
The next Steering Group
meeting is on Tuesday 15 June at 10.00am
have now been recruited into the study and have either received training in the
intervention or guidance if they are in the control group.
We have been
working with the Trusts to develop "good practice" statements and these
will be ready for the nurses before they visit any carers.
We are now recruiting
carers in Dundee, Fife, Perth and Angus. Many carers have now met the Research
Assistant and taken part in the baseline interviews.
A number of nurses
from the Dundee area have now been told which carers they are to offer support
to and are in the process of contacting them.
next Steering Group meeting will be held on Wednesday 21st January at 1.30pm at
The nurses have now been recruited into
the study and have either received training in the intervention or guidance if
they are in the control group.
We have been working with the Trusts to
develop "good practice" statements and these will be ready for the nurses
before they visit any carers.
We plan to recruit carers in a phased, but
planned way, and we have started to recruit carers from the Dundee area. We will
then recruit carers from Fife, Perth and then Angus.